Status:
COMPLETED
National Registry for Ichthyosis and Related Disorders
Lead Sponsor:
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Conditions:
Darier Disease
Hailey-Hailey Disease
Eligibility:
All Genders
Brief Summary
The ichthyoses are a family of genetic skin diseases characterized by dry, thickened, scaling skin. Dermatologists estimate that there are over twenty varieties of ichthyosis, with a wide range of sev...
Detailed Description
The purpose of this registry is to support studies aimed at determining the cause of the ichthyoses and treating them more effectively. The Registry offers blinded information about well-characterized...
Eligibility Criteria
Inclusion
- Note: Accrual into this study has been discontinued as of 03/31/04.
- Diagnosis of one of the ichthyoses, erythrokeratodermas, Darier disease, Hailey-Hailey disease, palmar-plantar keratodermas, pachyonychia congenita, extensive epidermal nevi, or related disorder
Exclusion
- Ichthyosis Vulgaris
Key Trial Info
Start Date :
September 1 1994
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 1 2004
Estimated Enrollment :
610 Patients enrolled
Trial Details
Trial ID
NCT00074685
Start Date
September 1 1994
End Date
January 1 2004
Last Update
September 28 2022
Active Locations (1)
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1
University of Washington
Seattle, Washington, United States, 98195