Status:
COMPLETED
The Early History of Universal Screening for Metabolic Disorders
Lead Sponsor:
University of Miami
Collaborating Sponsors:
HRSA/Maternal and Child Health Bureau
Conditions:
Phenylketonuria
Galactosemia
Eligibility:
All Genders
Brief Summary
We are doing this study to learn more about the early history of universal screening for metabolic disorders such as PKU and galactosemia. In particular, we are interested in learning from our past ex...
Detailed Description
Universal neonatal screening programs for metabolic disorders constitute a triumph of medicine and public policy in the US over the last 50 years. State programs to identify and treat disorders such a...
Eligibility Criteria
Inclusion
- participants in the history of early screening and treatment of PKU and galactosemia
Exclusion
- those who decline to be interviewed
Key Trial Info
Start Date :
January 1 2006
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
June 1 2008
Estimated Enrollment :
10 Patients enrolled
Trial Details
Trial ID
NCT00309400
Start Date
January 1 2006
End Date
June 1 2008
Last Update
August 20 2014
Active Locations (1)
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1
University of Miami Mailman Center for Child Development
Miami, Florida, United States, 33101