Status:

COMPLETED

Extension of Study TKT024 Evaluating Long-Term Safety and Clinical Outcomes in MPS II Patients Receiving Idursulfase

Lead Sponsor:

Shire

Conditions:

Hunter Syndrome

Mucopolysaccharidosis II (MPS II)

Eligibility:

MALE

5+ years

Phase:

PHASE2

PHASE3

Brief Summary

Study TKT024EXT was a long-term, single-arm, open-label extension of Study TKT024, a one year Phase 2/Phase 3 registration study. The primary objective of this extension study was to collect long-term...

Detailed Description

Study TKT024EXT was conducted in 2 phases. The first phase ("Phase I") was 2 years (104 weeks) in duration and consisted of weekly infusions of IV idursulfase (0.5 mg/kg), and the collection of patien...

Eligibility Criteria

Inclusion

  • Patient must have completed the double-blind phase of Study TKT024, defined as completing the Week 53 final evaluations.
  • Patient, patient's parent(s), or legally authorized representative must have voluntarily signed an Institutional Review Board (IRB)/Independent Ethics Committee (IEC)-approved informed consent form after all relevant aspects of the study have been explained and discussed with the patient.

Exclusion

  • Patient has received treatment with an investigational therapy other than iduronate-2-sulfatase in Study TKT024 within the past 60 days.
  • Patient is unable to comply with the protocol (e.g., due to a medical condition such as cervical cord compression or uncooperative attitude) or is unlikely to complete the study, as determined by the investigator.
  • Patient has experienced an adverse reaction to study drug in Study TKT024, which contraindicates further treatment with idursulfase.
  • Patient with known hypersensitivity to any of the components of idursulfase.

Key Trial Info

Start Date :

September 13 2004

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

January 31 2008

Estimated Enrollment :

94 Patients enrolled

Trial Details

Trial ID

NCT00630747

Start Date

September 13 2004

End Date

January 31 2008

Last Update

June 10 2021

Active Locations (52)

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Page 1 of 13 (52 locations)

1

St. Joseph's Hospital

Phoenix, Arizona, United States, 85013

2

Pediatric Clinical Research Center, Children's Hospital Oakland

Oakland, California, United States, 94609

3

The Children's Hospital

Denver, Colorado, United States, 80218

4

Harbin Clinic

Rome, Georgia, United States, 30165