Status:

COMPLETED

Multi-center Project: Spinal Abnormalities in Neurofibromatosis Type1 (NF1) Patients

Lead Sponsor:

Shriners Hospitals for Children

Conditions:

Neurofibromatosis Type 1

Eligibility:

All Genders

3-18 years

Brief Summary

We propose to establish a multi-center study to investigate the outcome of scoliosis and spinal abnormalities in patients with NF1. The three specific aims of this study are: Specific Aim 1 - To ass...

Detailed Description

The three specific aims of this study are: Specific Aim 1 - To assess health status and health-related quality of life (HRQL) in children and adolescents with NF1 and scoliosis. We hypothesize that c...

Eligibility Criteria

Inclusion

  • Meet NIH diagnostic criteria for NF1
  • Radiographic documentation of scoliosis will be necessary for inclusion as a "scoliosis case"
  • Age between 3 and 18 years

Exclusion

  • Do not have NF1

Key Trial Info

Start Date :

March 1 2006

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

September 1 2009

Estimated Enrollment :

300 Patients enrolled

Trial Details

Trial ID

NCT00667836

Start Date

March 1 2006

End Date

September 1 2009

Last Update

February 25 2019

Active Locations (1)

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Shriners Hospitals for Children, Salt Lake City

Salt Lake City, Utah, United States, 84103