Status:
COMPLETED
Screening Behavior in Adults With Hereditary Hemorrhagic Telangiectasia
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Osler-Rendu-Weber Disease
Osler-Rendu Disease
Eligibility:
All Genders
18+ years
Brief Summary
This study will explore the factors that influence screening behaviors of adults diagnosed with hereditary hemorrhagic telangiectasia (HHT), an inherited condition in which blood vessel defects called...
Detailed Description
The proposed study aims to understand the factors that influence screening behaviors of adults with hereditary hemorrhagic telangiectasia (HHT). HHT is a chronic condition, but with early diagnosis fo...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Men and women who self-report having a diagnosis of HHT.
- To read and write English.
- EXCLUSION CRITERIA:
- Individuals younger than 18.
Exclusion
Key Trial Info
Start Date :
May 21 2008
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 7 2016
Estimated Enrollment :
320 Patients enrolled
Trial Details
Trial ID
NCT00684879
Start Date
May 21 2008
End Date
January 7 2016
Last Update
November 25 2019
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892