Status:
COMPLETED
Perspectives on End-of-Life Care for Medically-Fragile Children and Young Adults
Lead Sponsor:
Akron Children's Hospital
Conditions:
Death
Eligibility:
All Genders
Brief Summary
Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff...
Eligibility Criteria
Inclusion
- HA at Hattie Larlham between January 1, 2006 to present
- HA provided care to \> 1 resident whose death occurred between January 1, 2006 through the end of the study period
- HA provided ongoing care to the resident for at least 5 days in the last 30 days at Hattie Larlham before the resident's death
- Parent/legal guardian of a Hattie Larlham resident whose death occurred between January 1, 2006 through the end of the study
Exclusion
- HA employed \< 30 days at Hattie Larlham or cared for resident \<5 days in last 30 days prior to the resident's death
- HA or parent/legal guardian who has not experienced a Hattie Larlham resident's death since December 31, 2005
Key Trial Info
Start Date :
February 1 2009
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2009
Estimated Enrollment :
125 Patients enrolled
Trial Details
Trial ID
NCT00724646
Start Date
February 1 2009
End Date
June 1 2009
Last Update
September 15 2009
Active Locations (1)
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1
Hattie Larlham Center for Disabled Children
Mantua, Ohio, United States, 44255