Status:
COMPLETED
Use of Population Descriptors in Human Genetic Research
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Population Groups
Genetics, Medical
Eligibility:
All Genders
21+ years
Brief Summary
This study will explore scientists opinions and practices regarding the use of population descriptors (e.g., race, ethnicity, ancestry, geography and nationality) to describe a research study populati...
Detailed Description
The usefulness of social and political population labels, including those based on race, ethnicity, geographic location, ancestry, and nationality, in science and medicine is a topic of heated debate....
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- The study population is comprised of intramural and extramural principal investigators:
- Conducting human genetic or genomic research on common disease
- Conducting a project in which they use population descriptors to describe their study sample
- Have collected, at a minimum, preliminary data that allows them to complete an exploratory exercise re-conceptualizing their use of population descriptors in this project.
- Participation is limited to researchers who have collected data that gives them sufficient background and context to meaningfully complete this exercise. Insight gathered from our study population on alternatives to existing methods of population classification and description used in human genetic research is especially useful not only because of their professional expertise, but because they are the group that would need to implement alternatives.
Exclusion
Key Trial Info
Start Date :
September 18 2008
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
August 8 2012
Estimated Enrollment :
18 Patients enrolled
Trial Details
Trial ID
NCT00767702
Start Date
September 18 2008
End Date
August 8 2012
Last Update
November 6 2019
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892