Status:

COMPLETED

Pilot Study Using Avastin and Gleevec to Treat the Progression of Intraluminal Pulmonary Vein Stenosis

Lead Sponsor:

Boston Children's Hospital

Conditions:

Pulmonary Veno Occlusive Disease

Eligibility:

All Genders

Phase:

PHASE1

PHASE2

Brief Summary

The objective of this study is to conduct a pilot study using biologic agents Avastin and Gleevec to treat progression of multivessel intraluminal pulmonary vein stenosis in children.

Detailed Description

Intraluminal pulmonary vein stenosis is rare but life threatening disease that affects both infants and children. It can be isolated to a single pulmonary vein, but most often occurs in multiple vesse...

Eligibility Criteria

Inclusion

  • Eligibility Criteria: (Both groups)
  • Evidence of intraluminal pulmonary vein stenosis in \> 1 vessel
  • Evidence of myofibroblast neo-proliferation, if biopsies were obtained
  • Acceptable organ function includes:
  • Creatinine \< 1.5 x normal for age. Bilirubin \< 1.5 x normal for age. ALT \< or = 5x normal ANC \> or = 1,500/mm3, Hemoglobin \> or = 10g/dl, Platelets \> or = 100,000/mm3.
  • Group A Eligibility Criteria: (begin treatment with Gleevec® only)
  • Significant concomitant congenital heart defect
  • Disease severity for each vessel Category 5 or lower or Category 6 or 7 in no more than 1 vessel
  • Group B Eligibility Criteria: (begin treatment with Gleevec® and Avastin®)
  • Primary PVS (i.e. without concomitant congenital heart defect or lung disease)
  • Significant concomitant lung disease
  • Patients with PVS and underlying CHD who have category 6 or 7 disease in at least 2 of their pulmonary veins even after surgical or cath-based interventions.
  • Accepted organ function includes:
  • Urine protein \< 1

Exclusion

    Key Trial Info

    Start Date :

    October 1 2008

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ACTUAL

    End Date :

    December 1 2015

    Estimated Enrollment :

    50 Patients enrolled

    Trial Details

    Trial ID

    NCT00891527

    Start Date

    October 1 2008

    End Date

    December 1 2015

    Last Update

    June 19 2019

    Active Locations (1)

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    Page 1 of 1 (1 locations)

    1

    Boston Childrens Hospital

    Boston, Massachusetts, United States, 02115