Status:

COMPLETED

A Rehabilitation Program in Children With Sickle Cell Disease and Cognitive Deficits: a Pilot Study

Lead Sponsor:

Washington University School of Medicine

Collaborating Sponsors:

National Heart, Lung, and Blood Institute (NHLBI)

American Society of Hematology

Conditions:

Sickle Cell Disease

Eligibility:

All Genders

8-18 years

Phase:

NA

Brief Summary

The overall goal of this project is to determine the feasibility of conducting a cognitive intervention for children with sickle cell disease.

Detailed Description

The primary aims of this clinical trial are: 1. Determine the effectiveness of targeted learning and memory strategy remediation in students with sickle cell disease and cognitive deficits. 2. Determ...

Eligibility Criteria

Inclusion

  • Sickle cell disease that is confirmed by hemoglobin analysis
  • Has a brain magnetic resonance imaging (MRI) document reading by a neuroradiologist
  • Cognitive deficits, which are defined by one standard deviation lower than the normal ranges of an age-based standard score in cognitive tests that are evaluated by a psychologist
  • Must be a student who will remain in school for at least 2 years
  • Must provide informed consent with assent in accordance with the institutional policies (institutional review board approval)

Exclusion

  • Known developmental delays (these participants are ineligible because their learning potential may be biased from a prior insult)
  • Intelligent quotient is less than 50 (may have impaired learning potential)
  • Aphasic (i.e., unable to produce intelligible speech)

Key Trial Info

Start Date :

September 1 2003

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

December 1 2014

Estimated Enrollment :

21 Patients enrolled

Trial Details

Trial ID

NCT00895154

Start Date

September 1 2003

End Date

December 1 2014

Last Update

May 15 2019

Active Locations (1)

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1

Washington University School of Medicine/St. Louis Children's Hospital

St Louis, Missouri, United States, 63110