Status:

COMPLETED

Quantitative Requirements of Docosahexaenoic Acid for Neural Function in Children With Phenylketonuria

Lead Sponsor:

Ludwig-Maximilians - University of Munich

Collaborating Sponsors:

European Union

Conditions:

Phenylketonuria

Eligibility:

All Genders

5-13 years

Phase:

NA

Brief Summary

Patients with phenylketonuria (PKU) have an inborn error in the metabolism of the amino acid phenylalanine (Phe) and thus must follow a strictly controlled protein-restricted diet from early infancy. ...

Eligibility Criteria

Inclusion

  • Children with classical PKU, who have been diagnosed and treated from the newborn period onwards
  • Classical PKU must have been established by a baseline plasma phenylalanine (PHE) level \>1200 µmol/L or detection of underlying mutations
  • Children are clinically healthy besides classical PKU
  • Good metabolic control (a minimum of 2 Phe-values during the last 6 months are needed with average Phe values being below 480 µmol/L in the last 6 months)
  • No n-3 LC-PUFA supplementation for at least 6 months before enrolment
  • Written informed consent of parents exists

Exclusion

  • Severe neurological symptoms
  • History of neurological disease
  • Children are unable to take DHA-capsules regularly
  • Acute illness, especially infections at the time of clinical examination/testing
  • Children with weight/height over the 97th percentile or below the 3rd percentile
  • Known hypersensitivity to fish oil products

Key Trial Info

Start Date :

May 1 2009

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 1 2013

Estimated Enrollment :

114 Patients enrolled

Trial Details

Trial ID

NCT00909012

Start Date

May 1 2009

End Date

March 1 2013

Last Update

August 22 2022

Active Locations (6)

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Page 1 of 2 (6 locations)

1

Zentrum für Kinder- und Jugendmedizin

Heidelberg, Germany, D-69120

2

LMU

München, Germany, D-80337

3

Department of Pediatrics, San Paolo Hospital Milano

Milan, Italy

4

Department of Pediatrics, IFIMAV-Hospital M. Valdecill

Santander, Spain