Status:
ACTIVE_NOT_RECRUITING
Assessment of Functional Independence and Quality of Life in Adolescents With Spina Bifid
Lead Sponsor:
Azienda USL Reggio Emilia - IRCCS
Conditions:
Spinal Dysraphism
Eligibility:
All Genders
14-21 years
Brief Summary
The purpose of this study is to investigate the level of functional independence and the quality of life of adolescents and young adults with spina bifid in an Italian population.
Detailed Description
We submitted the Quality of Life in spina bifid Questionnaire to subjects who participated in the study and the Spinal Cord Independence Measure to the parents of subjects.
Eligibility Criteria
Inclusion
- recurrence of clinic control in Unit for Spina Bifid in Parma
- 14-21 years old
Exclusion
- subjects unable to understand the items of the questionnaire (mental retardation and need for help at school )
- subjects without any caregiver
Key Trial Info
Start Date :
July 1 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
December 1 2025
Estimated Enrollment :
41 Patients enrolled
Trial Details
Trial ID
NCT00966927
Start Date
July 1 2021
End Date
December 1 2025
Last Update
June 24 2025
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
Unit for Care of Spina Bifida
Parma, Parma, Italy, 43126