Status:
COMPLETED
An Exploratory Study of the Characteristics of and Challenges for International Families Seeking Medical Care in the United States
Lead Sponsor:
National Institute of Mental Health (NIMH)
Conditions:
Cancer
Allogeneic Peripheral Blood Stem Cell Transplant
Eligibility:
All Genders
18-100 years
Brief Summary
Background: \- State-of-the art care for children with cancer or rare diseases is not available in all countries. Owing to the proximity of Latin America and the growing numbers of Latinos already in...
Detailed Description
Background: The number of individuals who choose to travel out of their native country for medical treatment in the United States has been growing (Purnell \& Paulanka, 1998). State-of-the art care f...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Caregivers of children aged 0-25.
- The children of the participants must be involved in clinical research or be receiving treatment for their child s medical condition. This includes but is not limited to oncological and hematological diseases, conditions requiring transplant, and rare immunodeficiency or genetic conditions.
- The family traveled to the US for the purpose of addressing their child s medical condition.
- Caregivers must be from a country outside of the United States. Care givers must be fluent in Spanish or English.
- Caregiver has been away from the country of origin for a minimum of three months.
- The child s treatment protocol PI must agree to have the research team contact potential participants in order to explore their interest in this protocol.
- EXCLUSION CRITERIA:
- The caregiver participant immigrated to the US for reasons other than enrolling in a research study or addressing their child s medical condition.
- Presence of psychotic symptoms or severe psychological distress, which in the judgment of the Principal or Associate Investigator or consulting psychiatrist would compromise the caregiver s ability to engage in the interview or is likely to interfere with the study procedures or results.
Exclusion
Key Trial Info
Start Date :
August 31 2010
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 13 2013
Estimated Enrollment :
22 Patients enrolled
Trial Details
Trial ID
NCT01211990
Start Date
August 31 2010
End Date
May 13 2013
Last Update
October 6 2017
Active Locations (1)
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1
National Institutes of Health Clinical Center, 9000 Rockville Pike
Bethesda, Maryland, United States, 20892