Status:
RECRUITING
ARPKD Database Study
Lead Sponsor:
Children's Hospital of Philadelphia
Collaborating Sponsors:
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Conditions:
Hepato/Renal Fibrocystic Disease
Autosomal Recessive Polycystic Kidney Disease
Eligibility:
All Genders
Up to 18 years
Brief Summary
Hepato-renal fibrocystic diseases (HRFD) is a term developed that encompasses rare diseases such as Autosomal Recessive Polycystic Kidney Disease (ARPKD), and other diseases with common features (Joub...
Detailed Description
Subject's will have the option of the database, genetic, tissue, and urine section of the study. This study does not require a clinic visit to our center. We will review past, current, and future med...
Eligibility Criteria
Inclusion
- Demonstration of hepato/renal fibrocystic disease by clinical information, imaging studies, biopsy, autopsy, or genetic testing.
Exclusion
- ADPKD Urinary tract malformations Major congenital anomalies of other systems
Key Trial Info
Start Date :
June 1 2011
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2030
Estimated Enrollment :
200 Patients enrolled
Trial Details
Trial ID
NCT01401998
Start Date
June 1 2011
End Date
December 1 2030
Last Update
June 13 2025
Active Locations (6)
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1
Children's National Hospital
Washington D.C., District of Columbia, United States, 20010
2
Emory
Atlanta, Georgia, United States, 30322
3
Boston Children's
Boston, Massachusetts, United States, 02115
4
Cincinnati Children's
Cincinnati, Ohio, United States, 45229