Status:

COMPLETED

Internet-based Educational Program to Promote Self-Management for Teens With Hemophilia

Lead Sponsor:

The Hospital for Sick Children

Conditions:

Hemophilia A

Eligibility:

All Genders

13-18 years

Phase:

NA

Brief Summary

In summary, there is a clear need to improve knowledge and self-management skills in adolescents with hemophilia. To date, there are no published accounts of self-management programs for this populati...

Detailed Description

The overall aim of this program of research is to develop and evaluate the "Teens Taking Charge: Managing Hemophilia Online" Internet intervention that will help adolescents with hemophilia to better ...

Eligibility Criteria

Inclusion

  • Inclusion Criteria:
  • age 13-18
  • diagnosis of mild, moderate or severe hemophilia A or B
  • be able to speak and read English or French.
  • must have access to the Internet at home
  • Exclusion Criteria
  • cognitive impairments
  • haematologist feels that they have a significant medical or psychiatric condition that will impact their participation
  • don't have access to the internet.

Exclusion

    Key Trial Info

    Start Date :

    November 1 2011

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ACTUAL

    End Date :

    March 1 2013

    Estimated Enrollment :

    29 Patients enrolled

    Trial Details

    Trial ID

    NCT01477437

    Start Date

    November 1 2011

    End Date

    March 1 2013

    Last Update

    January 3 2018

    Active Locations (1)

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    Page 1 of 1 (1 locations)

    1

    The Hospital for Sick Children

    Toronto, Ontario, Canada, M5G1X8