Status:
UNKNOWN
Epidemiological, Clinical and Etiological Features of SUSAC's Syndrome
Lead Sponsor:
Assistance Publique - Hôpitaux de Paris
Conditions:
SUSAC's Syndrome
Encephalopathy
Eligibility:
All Genders
18+ years
Brief Summary
SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with...
Detailed Description
SUSAC's Syndrome (SS) is characterized by the clinical triad of encephalopathy, hearing loss, and retinal artery branch occlusions. Since the first description of SS in 1979, hundreds of patients with...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Age older than 18
- Two clinical features of the triad present: encephalopathy, sensorineural hearing loss assessed by audiogram, retinal artery occlusion assessed by fundoscopy or fluorescein retinal angiography.
- Written informed consent provided. In case of subjects unable to give a written informed consent because of encephalopathy associated with the disease, a written statement of non-opposition should be signed by a relative. This non-opposition statement should be then confirmed by the subject as soon as possible.
- Realization of a medical examination beforehand
- EXCLUSION CRITERIA:
- Alternative diagnosis: multiple sclerosis, mitochondriopathy, Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy (CADASIL), primary brain tumor, Lyme disease.
- In case of associated disease (autoimmune disease, tumor, metabolical disease,…), inclusion will need further analysis by the expert comity.
- Not membership in a national insurance scheme
Exclusion
Key Trial Info
Start Date :
November 1 2011
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
May 1 2021
Estimated Enrollment :
100 Patients enrolled
Trial Details
Trial ID
NCT01481662
Start Date
November 1 2011
End Date
May 1 2021
Last Update
December 21 2017
Active Locations (1)
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1
Hospital BICHAT
Paris, France, 75018