Status:
RECRUITING
National Lymphangioleiomyomatosis Registry, France
Lead Sponsor:
Vincent COTTIN
Collaborating Sponsors:
Hospices Civils de Lyon
Conditions:
Lymphangioleiomyomatosis
Eligibility:
All Genders
18+ years
Brief Summary
RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and i...
Detailed Description
Lymphangioleiomyomatosis is a rare pulmonary disease occuring preferentially in women. Few data are available regarding the epidemiology of this disease, the frequency of the various forms with mild t...
Eligibility Criteria
Inclusion
- Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous sclerosis.
- patients diagnosed or hospitalized or seen in consultation since 01/01/2008
Exclusion
- None
Key Trial Info
Start Date :
January 1 2012
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2026
Estimated Enrollment :
200 Patients enrolled
Trial Details
Trial ID
NCT01484236
Start Date
January 1 2012
End Date
December 1 2026
Last Update
March 13 2025
Active Locations (1)
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1
Hôpital Louis Pradel
Lyon, France, 69677