Status:
RECRUITING
Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford
Lead Sponsor:
Sanford Health
Collaborating Sponsors:
National Ataxia Foundation
International WAGR Syndrome Association
Conditions:
Rare Disorders
Undiagnosed Disorders
Eligibility:
All Genders
Brief Summary
CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all ra...
Detailed Description
CoRDS collects contact, sociodemographic and health information about participants. This information is entered into CoRDS and linked to a unique coded identifier. Below are some examples of informati...
Eligibility Criteria
Inclusion
- Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed or an unaffected carrier of a rare/uncommon disease
Exclusion
- Diagnosis of a disease which is not rare
Key Trial Info
Start Date :
July 1 2010
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2100
Estimated Enrollment :
20000 Patients enrolled
Trial Details
Trial ID
NCT01793168
Start Date
July 1 2010
End Date
December 1 2100
Last Update
May 29 2025
Active Locations (2)
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1
Sanford Health
Sioux Falls, South Dakota, United States, 57104
2
Online Patient Enrollment System
Sydney, Australia