Status:
COMPLETED
Dignity Talk: Helping Palliative Care Patients and Families Have Important Conversations
Lead Sponsor:
University of Manitoba
Collaborating Sponsors:
Canadian Institutes of Health Research (CIHR)
Conditions:
Palliative Care
Family
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
Dying patients and their families face many challenges near the end-of-life. Not only do patients often experience physical distress, but they also have feelings of loss of dignity, isolation, and unc...
Detailed Description
See above summary
Eligibility Criteria
Inclusion
- For Patient:
- Patients being cared for:
- in a palliative care unit or whose care is focused on palliation as determined by clinical staff
- or patients who have have a confirmed diagnosis of amyotropic lateral sclerosis, and have symptoms in a domain that interferes with their social or occupation functioning: a) mobility, b) dysphasia, c) dyspnea, or d) speech or patients who have are have been on dialysis \> 3 months and are \> 60 years of age - or residents of Personal Care Home all of whom are:
- 18 years of age or older
- able to provide informed oral and written consent
- cognitive capacity (based on clinical consensus)
- For Family Member or Close Friend:
- Family member or close friend who the patient identifies they would be comfortable talking with using the Dignity Talk question framework
- Family member who is 18 years of age or older
- Family member who is able to provide oral and written consent
- Family member who has cognitive capacity to participate in meaningful conversation (based on research staff decision)
- For Healthcare Provider:
- Employed one of the participating sites
- in a discipline directly involved in clinical care (physician, nursing, social work, spiritual care, allied healthcare, etc.)
Exclusion
- not meeting the above inclusion criteria
Key Trial Info
Start Date :
March 1 2013
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
October 31 2017
Estimated Enrollment :
56 Patients enrolled
Trial Details
Trial ID
NCT01883375
Start Date
March 1 2013
End Date
October 31 2017
Last Update
December 14 2017
Active Locations (13)
Enter a location and click search to find clinical trials sorted by distance.
1
Victoria Hospice
Victoria, British Columbia, Canada
2
St. Boniface Hospital
Winnipeg, Manitoba, Canada, R3E 0V9
3
Riverview Health Centre
Winnipeg, Manitoba, Canada, R3L 2P4
4
Concordia Hospital
Winnipeg, Manitoba, Canada