Status:
RECRUITING
Neurofibromatosis (NF) Registry Portal
Lead Sponsor:
The Children's Tumor Foundation
Conditions:
Neurofibromatosis 1
Neurofibromatosis 2
Eligibility:
All Genders
Brief Summary
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted...
Detailed Description
Patients and parents of patients will be made aware of the Neurofibromatosis (NF) Registry through various non-commercial information sources such as the Children's Tumor Foundation (CTF) website, CTF...
Eligibility Criteria
Inclusion
- Diagnosed with NF1
- Diagnosed with NF2
- Diagnosed with Schwannomatosis
Exclusion
- Failure to complete account registration
Key Trial Info
Start Date :
June 1 2012
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
June 1 2050
Estimated Enrollment :
20000 Patients enrolled
Trial Details
Trial ID
NCT01885767
Start Date
June 1 2012
End Date
June 1 2050
Last Update
August 30 2023
Active Locations (1)
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1
Children's Tumor Fundation
New York, New York, United States, 10017