Status:
UNKNOWN
National Cohort Study of Idiopathic and Heritable Pulmonary Arterial Hypertension
Lead Sponsor:
University of Cambridge
Collaborating Sponsors:
British Heart Foundation
Medical Research Council
Conditions:
Pulmonary Arterial Hypertension
Eligibility:
All Genders
Brief Summary
Pulmonary arterial hypertension (PAH), or high blood pressure in the lungs, is a rare condition that can shorten life. Although the cause of this disease is usually unknown, in about 70% of heritable ...
Detailed Description
What does the study involve? PAH patients will be seen at their local centre by their service team but they will have additional bloods taken. Relatives of PAH patients will be seen every year at the...
Eligibility Criteria
Inclusion
- Inclusion Criteria:
- Inclusion Criteria-Patient
- Participant is willing and able to give informed consent for participation in the study.
- Male or Female, any age
- Diagnosed with idiopathic, anorexigen-induced,heritable PAH, PVOD/PCH. Inclusion Criteria-Relative
- Participant is willing and able to give informed consent for participation in the study.
- Male or Female, any age
- Has a family member diagnosed with idiopathic, anorexigen-induced, PVOD/PCH or heritable PAH
- Exclusion Criteria-Patient
- The participant may not enter the study if ANY of the following apply:
- Patient is unable to give informed consent.
- Not suffering from idiopathic, anorexigen-induced, PVOD/PCH or heritable PAH
- Exclusion Criteria-Relative
- The participant may not enter the study if ANY of the following apply:
- • Patient is unable to give informed consent.
- Inclusion criteria-Controls
- Participant is willing and able to give informed consent for participation in the study.
- Self-reported to be healthy
- Age range up to 75 years
Exclusion
Key Trial Info
Start Date :
February 1 2014
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2022
Estimated Enrollment :
3600 Patients enrolled
Trial Details
Trial ID
NCT01907295
Start Date
February 1 2014
End Date
December 1 2022
Last Update
May 20 2022
Active Locations (8)
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1
Royal United Hospitals Bath
Bath, United Kingdom, BA1 3NG
2
Royal Papworth Hospital NHS Trust
Cambridge, United Kingdom
3
Golden Jubilee National Hospital
Glasgow, United Kingdom
4
Imperial Hospital
London, United Kingdom