Status:
COMPLETED
Where Does Hope Fit In? The Relationship Between Hope, Uncertainty, and Coping Efficacy in Mothers of Children With Duchenne/Becker Muscular Dystrophy
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Stress
Eligibility:
All Genders
18+ years
Brief Summary
Background: \- Children with Duchenne/Becker Muscular Dystrophy (DBMD) slowly lose muscle function. They usually die at a young age. Some mothers adapt to the demands of caring for a child with this ...
Detailed Description
The proposed study aims to examine the relationships between maternal uncertainty, hope, and coping efficacy in mothers of children with Duchenne/Becker Muscular Dystrophy (DBMD). DBMD is described as...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Participants will be biological mothers of a living child with Duchenne or Becker muscular dystrophy living in the United States, who are 18 years or older and able to answer a survey in English.
- Participants will be asked to disclose their child's diagnosis but no screening evaluation will be required.
- EXCLUSION CRITERIA:
- Participants unable to answer a survey in English.
Exclusion
Key Trial Info
Start Date :
July 6 2014
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
July 7 2017
Estimated Enrollment :
228 Patients enrolled
Trial Details
Trial ID
NCT02194725
Start Date
July 6 2014
End Date
July 7 2017
Last Update
April 5 2018
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892