Status:

COMPLETED

Care Coordination for Children With Disabilities

Lead Sponsor:

University of North Carolina, Chapel Hill

Collaborating Sponsors:

Patient-Centered Outcomes Research Institute

Conditions:

Experiences With Health Care Coordination

Eligibility:

All Genders

3+ years

Brief Summary

The proposed study uses a recent policy change in Ohio as a natural experiment to assess outcomes and experiences of children who qualify for Medicaid under the Aged, Blind, Disabled category and thei...

Detailed Description

Children with disabilities have complex healthcare needs requiring multiple providers in multiple locations. The lack of coordinated care for this vulnerable population leads to poorer outcomes, highe...

Eligibility Criteria

Inclusion

  • Stakeholder Interviews
  • \- Be associated with the ACO as ACO leadership, a care coordinator, a payor or policy-maker.
  • Caregiver Interviews
  • Currently live in south-central Ohio
  • Have lived in south-central Ohio since July 2012
  • Be a caregiver of a child ages 3-18 who qualifies for Medicaid under the Aged, Blind, and Disabled category
  • Focus Groups, Caregivers and Youth
  • Currently live in south-central Ohio
  • Have lived in south-central Ohio since July 2012
  • Be a caregiver of a child ages 3-18 who qualifies for Medicaid under the Aged, Blind, and Disabled (ABD) category, who receives care at Nationwide Children's Hospital, Partners for Kids
  • For youth focus groups, be a child ages 14-18 who qualifies for Medicaid under the Aged, Blind, and Disabled category, who is intellectually capable of participating in focus groups, and who receives care at Nationwide Children's Hospital, Partners for Kids

Exclusion

  • Non-English-speaking
  • For youth focus groups, intellectual disabilities that preclude being able to participate in a focus group

Key Trial Info

Start Date :

March 1 2015

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

November 30 2017

Estimated Enrollment :

2188 Patients enrolled

Trial Details

Trial ID

NCT02304380

Start Date

March 1 2015

End Date

November 30 2017

Last Update

July 2 2020

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