Status:

TERMINATED

Impact of a Psychoeducational Intervention on Expectations and Coping in Young Women Exposed to a High HBOC Risk

Lead Sponsor:

Centre Jean Perrin

Collaborating Sponsors:

Fondation de l'Avenir et la MASFIP, Paris - France

Conditions:

Hereditary Breast and Ovarian Cancer Syndrome

Eligibility:

FEMALE

18-40 years

Phase:

NA

Brief Summary

Young female counselees (18-40 years) belonging to HBOC families with a known mutation on BRCA-genes or not, receive a lot of information regarding their cancer risk. Information sources are numerous ...

Detailed Description

Background: Young women exposed to a high hereditary breast/ovaries cancer (HBOC) risk are particularly vulnerable: they are ignored by health prevention measures; they are embedded in a stream of con...

Eligibility Criteria

Inclusion

  • Participants must belong to HBOC families,
  • aged between 18 and 40 years
  • Single or couple with a desire to have a child
  • without any personal history of cancer.
  • must have consulted at the oncogenetics department of the CCC Jean Perrin
  • tested for a BRCA mutation.
  • mutation carrier in case of a known familial BRCA mutation, else exposed to a high familial HBOC risk (Eisinger score ≥ 6 or Manchester score ≥ 16)
  • must live in Auvergne region (middle France)
  • signed an informed consent before inclusion.

Exclusion

  • pregnant women
  • person who cannot answer questionnaires: language difficulties and/or cannot write in French correctly.
  • no possible connection to our web-site
  • psychiatric troubles and/or ongoing treatments preventing from a week-end stay in a SPA resort

Key Trial Info

Start Date :

April 1 2016

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

September 14 2021

Estimated Enrollment :

32 Patients enrolled

Trial Details

Trial ID

NCT02705924

Start Date

April 1 2016

End Date

September 14 2021

Last Update

November 30 2021

Active Locations (1)

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Centre Jean Perrin

Clermont-Ferrand, Puy De Dome, France, 63011