Status:
UNKNOWN
Origins and Impact of EDS in Connective Tissues and Skin
Lead Sponsor:
University College, London
Collaborating Sponsors:
University College London Hospitals
Conditions:
Ehlers-Danlos Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
Ehlers-Danlos Syndrome (EDS) is an inherited disease of collagen, found in connective tissues, such as skin. EDS patients suffer from joint and skin problems (skin hyperextensibility, joint hypermobil...
Eligibility Criteria
Inclusion
- Adult (18+) patients requiring elective surgery as part of their treatment plan who fulfil the Brighton criteria for Joint Hypermobility Syndrome (JHS)/EDS hypermobility type with significant joint hypermobility (Beighton score of 6 and above) and /or have evidence of significant connective tissue weakness, or rectal/vaginal prolapse
Exclusion
- Patients with insufficient ability in English to give informed consent, if a translator is not present.
- Patients with severe developmental disorders, precluding their consent for research
Key Trial Info
Start Date :
April 1 2017
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
April 1 2021
Estimated Enrollment :
35 Patients enrolled
Trial Details
Trial ID
NCT02721797
Start Date
April 1 2017
End Date
April 1 2021
Last Update
March 27 2020
Active Locations (1)
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1
University Collage Hospital
London, United Kingdom, NW1 2BU