Status:

COMPLETED

Palliative Care Communication With Alaska Native and American Indian People

Lead Sponsor:

Southcentral Foundation

Collaborating Sponsors:

University of Colorado, Denver

University of New Mexico

Conditions:

Advance Care Planning

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

This mixed-methods study is culturally tailoring and evaluating a communication intervention to increase the frequency and quality of advance care planning with diverse American Indian and Alaska Nati...

Detailed Description

Palliative care is an interdisciplinary field that aims to relieve emotional, spiritual and physical suffering and improve quality of life in patients with serious, life-limiting illness and their fam...

Eligibility Criteria

Inclusion

  • Alaska Native and/or American Indian (patients)
  • Age 18 or older (patients and providers)
  • Employed at least 2 years as a primary care provider at one of the two study sites (providers)
  • Have a primary care provider of record at one of the two study sites (patients)
  • Have had at least 2 visits with primary care provider in previous 12 months (patients)
  • Having at least one serious, life-limiting condition, including metastatic cancer, primary lung cancer, chronic obstructive pulmonary disorder, heart disease, liver disease or cirrhosis, renal failure, or being oxygen dependent. (patients)

Exclusion

  • Under age 18 (patients and providers)
  • Not Alaska Native or American Indian (patients)
  • Not having a primary care provider at one of the study sites (patients)
  • Not being employed for at least two years as a primary care provider at one of the study sites (providers)
  • Not having had at least 2 visits with a primary care providers at one of the study sites in the previous 12 months (patients)
  • Not having a serious, life-limiting condition, such as metastatic cancer, primary lung cancer, chronic obstructive pulmonary disorder, heart disease, liver disease or cirrhosis, renal failure, or being oxygen dependent.

Key Trial Info

Start Date :

January 28 2019

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

July 1 2021

Estimated Enrollment :

59 Patients enrolled

Trial Details

Trial ID

NCT03256110

Start Date

January 28 2019

End Date

July 1 2021

Last Update

October 11 2021

Active Locations (2)

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Page 1 of 1 (2 locations)

1

Southcentral Foundation

Anchorage, Alaska, United States, 99508

2

First Nations Community HealthSource

Albuquerque, New Mexico, United States, 87108