Status:
COMPLETED
Study About Annoucement of the Diagnosis of Neurofibromatosis 1 in de Novo Forms
Lead Sponsor:
University Hospital, Brest
Conditions:
Neurofibromatosis 1
Diagnoses Disease
Eligibility:
All Genders
18+ years
Brief Summary
Neurofibromatosis type 1 (NF1) is one of the most common autosomal dominant genetic disorders. The aim of our study was to evaluate post-traumatic stress disorder (PTSD) in patients and their families...
Eligibility Criteria
Inclusion
- Patient aged 18 or more, or parent of a children
- Patient with a neurofibromatosis type 1 or parent of a children with a neurofibromatosis 1 in de novo form
- Followed for a neurofibromatosis type 1 de novo at the dedicated consultation in the University Hospital of Brest, since april 2013
- Agree to participate
Exclusion
- Patients aged of 18 years old or lower
- Refusal to participate
Key Trial Info
Start Date :
July 15 2016
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
December 31 2016
Estimated Enrollment :
31 Patients enrolled
Trial Details
Trial ID
NCT03298438
Start Date
July 15 2016
End Date
December 31 2016
Last Update
October 2 2017
Active Locations (1)
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1
CHRU de Brest
Brest, France, 29609