Status:

WITHDRAWN

A Study of an Investigational Drug, Cemdisiran (ALN-CC5), in Patients With Atypical Hemolytic Uremic Syndrome

Lead Sponsor:

Alnylam Pharmaceuticals

Conditions:

Atypical Hemolytic Uremic Syndrome

Eligibility:

All Genders

18+ years

Phase:

PHASE2

Brief Summary

The purpose of this study is to evaluate the safety, tolerability and pharmacokinetics of Cemdisiran in patients with aHUS.

Eligibility Criteria

Inclusion

  • Willing to provide written informed consent and to comply with the study requirements
  • Age 18 years or older
  • Clinical diagnosis of primary aHUS
  • Clinical thrombotic microangiopathy (TMA) activity
  • Women of child-bearing potential must have a negative pregnancy test, cannot be breast feeding, and must be willing to use a highly effective method of contraception
  • Previously vaccinated with meningococcal group ACWY conjugate vaccine and meningococcal group B vaccine or willingness to receive these vaccinations
  • ADAMTS13 \>10% or other proven aHUS-associated mutation

Exclusion

  • Clinically significant abnormal laboratory results
  • Positive Shiga toxin producing Escherichia coli test at Screening
  • Suspected secondary aHUS, in the opinion of the Investigator (unless there is a documented aHUS-associated genetic mutation)
  • Positive direct Coombs test
  • Patients who have received hemodialysis for \>3 months
  • Bone marrow transplant recipients
  • Organ transplant recipients, except for kidney transplant recipients with primary aHUS (confirmed by known genetic mutation and kidney biopsy)
  • Known history or evidence of systemic lupus erythematosus or antiphospholipid antibody syndrome
  • History of multiple drug allergies or history of allergic reaction to an oligonucleotide or GalNAc
  • Malignancy (except for non-melanoma skin cancers, cervical in-situ carcinoma, breast ductal carcinoma in situ, or stage 1 prostate carcinoma) within the last 5 years
  • Patients with a poor prognosis that is expected to limit their life expectancy to less than 3 months, in the opinion of the Investigator

Key Trial Info

Start Date :

September 19 2017

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

September 12 2018

Estimated Enrollment :

Patients enrolled

Trial Details

Trial ID

NCT03303313

Start Date

September 19 2017

End Date

September 12 2018

Last Update

October 1 2018

Active Locations (12)

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Page 1 of 3 (12 locations)

1

Clinical Trial Site

Sarajevo, Bosnia and Herzegovina

2

Clinical Trial Site

Calgary, Canada, T2N 2T9

3

Clinical Trial Site

Tallinn, Estonia

4

Clinical Trial Site

Tartu, Estonia