Status:
RECRUITING
Longitudinal Study of Neurodegenerative Disorders
Lead Sponsor:
University of Pittsburgh
Conditions:
MLD
Krabbe Disease
Eligibility:
All Genders
Brief Summary
The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the rare neurode...
Detailed Description
Patients would be evaluated by a multidisciplinary team at specific time points every 3 months the first year, every 6 months the second year and once a year thereafter.
Eligibility Criteria
Inclusion
- Any patient with a genetic neurodegenerative disorder
Exclusion
- none
Key Trial Info
Start Date :
January 11 2012
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
January 1 2035
Estimated Enrollment :
1500 Patients enrolled
Trial Details
Trial ID
NCT03333200
Start Date
January 11 2012
End Date
January 1 2035
Last Update
March 7 2025
Active Locations (1)
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1
UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, United States, 15224