Status:
RECRUITING
Natural History of Wilson Disease
Lead Sponsor:
Yale University
Collaborating Sponsors:
Wilson Disease Association
Conditions:
Wilson Disease
Eligibility:
All Genders
Brief Summary
The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the op...
Detailed Description
There are three aims outlined as part of this research study. Aim 1 is to study the natural history of a carefully characterized cohort of patients with WD followed longitudinally at Centers of Excel...
Eligibility Criteria
Inclusion
- Known diagnosis of WD
- Able and willing to provide informed consent for adults (Parental/guardian permission (informed consent) and if appropriate, child assent for participants \<18 (or per local Institutional Review Board (IRB) regulation)
Exclusion
- Diagnosis of WD has been excluded
- Unwilling to provide informed consent or assent
Key Trial Info
Start Date :
December 18 2017
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
November 15 2029
Estimated Enrollment :
300 Patients enrolled
Trial Details
Trial ID
NCT03334292
Start Date
December 18 2017
End Date
November 15 2029
Last Update
May 22 2025
Active Locations (6)
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1
Yale University
New Haven, Connecticut, United States, 06520
2
Advent Health
Orlando, Florida, United States, 32803
3
Baylor College of Medicine
Houston, Texas, United States, 77030
4
Seattle Children's Hospital
Seattle, Washington, United States, 98105