Status:
COMPLETED
Mothers Experiences With X-linked Retinoschisis Compared to Fathers Experiences
Lead Sponsor:
National Eye Institute (NEI)
Conditions:
Retinoschisis
X-Linked
Eligibility:
All Genders
18+ years
Brief Summary
Background: X-linked retinoschisis (XLRS) is a genetic condition. It usually presents in boys in childhood with vision loss. Genetic conditions affect the people who have it and also their family mem...
Detailed Description
OBJECTIVE: The objective of this study is to explore the experiences of mothers of sons with X-linked retinoschisis (XLRS) compared to fathers of sons with XLRS and to draft a personality profile of b...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Participants may be eligible to take part in this study if they: Have a biological son of any age with XLRS who is enrolled in XLRS Clinical and Molecular Studies protocol (03-EI-0033).
- EXCLUSION CRITERIA:
- Participants may not be able to take part in this study if they:
- Are unable to understand and comply with the procedures of this study.
- Cannot communicate in English orally and in writing.
Exclusion
Key Trial Info
Start Date :
December 1 2017
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
October 30 2019
Estimated Enrollment :
12 Patients enrolled
Trial Details
Trial ID
NCT03354403
Start Date
December 1 2017
End Date
October 30 2019
Last Update
November 1 2019
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
National Institutes of Health Clinical Center
Bethesda, Maryland, United States, 20892