Status:
RECRUITING
Evaluation of HEArt invoLvement in Patients With FABRY Disease
Lead Sponsor:
Wuerzburg University Hospital
Collaborating Sponsors:
Competence Network Heart Failure
Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)
Conditions:
Rare Diseases
Fabry Disease
Eligibility:
All Genders
18+ years
Brief Summary
This study evaluates predictors for the incidence of arrhythmias and sudden cardiac death as well as terminal heart failure in patients with Fabry disease.
Detailed Description
Fabry disease is a rare disease and part of the group of lysosomal storage disorders. Natural history of Fabry disease has proven poor survival to ages \>50 years outlining the importance to evaluate ...
Eligibility Criteria
Inclusion
- Fabry disease (genetically confirmed)
- Signed informed consent
- 18 years and older
Exclusion
- No informed consent
- Withdrawal of informed consent
Key Trial Info
Start Date :
January 1 2001
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
March 1 2032
Estimated Enrollment :
650 Patients enrolled
Trial Details
Trial ID
NCT03362164
Start Date
January 1 2001
End Date
March 1 2032
Last Update
July 7 2022
Active Locations (1)
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1
Wuerzburg University Hospital
Würzburg, Bavaria, Germany, 97080