Status:
COMPLETED
Engaging Siblings of Adults With Autism in Future Planning
Lead Sponsor:
Boston University Charles River Campus
Collaborating Sponsors:
National Institute of Mental Health (NIMH)
Conditions:
Autistic Disorder
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The goal of this pilot study was to develop and obtain preliminary feasibility and effectiveness data of a telehealth program (Siblings FORWARD) to help siblings of autistic adults work with their fam...
Detailed Description
The researchers developed a program to facilitate the engagement of adult siblings to work with their families to plan for the future of their autistic sibling. Siblings FORWARD (Focusing on Relations...
Eligibility Criteria
Inclusion
- Siblings of adults with autism spectrum disorder (ASD):
- Have one or more adult brother(s) or sister(s) with ASD who are either biologically related and/or were raised in the same family of origin (e.g., adopted, step, or foster siblings)
- Age 18+.
- English or Spanish fluency.
- Autistic Adults:
- Have an ASD diagnosis.
- Have an adult sibling
- Age 21+.
- English or Spanish fluency if verbal.
Exclusion
- Siblings of autistic adults:
- Siblings will be excluded if they have an ASD diagnosis themselves or if they have any disability that would interfere with their ability to engage meaningfully in future planning for the autistic adult.
- Autistic adults:
- None
Key Trial Info
Start Date :
February 1 2017
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
August 31 2021
Estimated Enrollment :
19 Patients enrolled
Trial Details
Trial ID
NCT03374072
Start Date
February 1 2017
End Date
August 31 2021
Last Update
March 7 2023
Active Locations (1)
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1
Boston University
Boston, Massachusetts, United States, 02215