Status:
COMPLETED
CEGIR 7807: Validation of Online Cohort of EGID Patients Enrolled in RDCRN CEGIR Contact Registry
Lead Sponsor:
Children's Hospital Medical Center, Cincinnati
Collaborating Sponsors:
National Institute of Allergy and Infectious Diseases (NIAID)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Conditions:
Eosinophilic Esophagitis
Eligibility:
All Genders
Brief Summary
The purpose of this study is to validate the online cohort of EGID patients enrolled in the RDCRN CEGIR CR. In order to achieve this objective, the investigators will determine the agreement between s...
Detailed Description
All individuals with EGID and enrolled in the RDCRN CEGIR CR will be invited to participate in this survey. As of 04/28, 1567 EGID patients have enrolled in CEGIR CR \[EoE=1,217, EG=56, EGE=65, EC=52;...
Eligibility Criteria
Inclusion
- Enrolled in the RDCRN CEGIR Contact Registry, and with Internet access.
- Diagnosis of EGID (EoE, EG, EGE, EE and/or EC)
- Age: all ages. Parents/guardian of children \< 18 years of age will respond to the questionnaire on behalf of their child.
Exclusion
- Inability to provide informed consent and complete survey
- Unaffected family members of EGID patients
- European Union participants who did not complete General Data Protection Regulation requirements.
Key Trial Info
Start Date :
September 4 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
July 1 2020
Estimated Enrollment :
187 Patients enrolled
Trial Details
Trial ID
NCT03382678
Start Date
September 4 2018
End Date
July 1 2020
Last Update
September 1 2021
Active Locations (2)
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1
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229-3039
2
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229