Status:
COMPLETED
Journey of Patients With Vasculitis From First Symptom to Diagnosis
Lead Sponsor:
University of Pennsylvania
Conditions:
Vasculitis
Systemic Vasculitis
Eligibility:
All Genders
Brief Summary
This study seeks to understand the journey that patients eventually are diagnosed with vasculitis experience in the period prior to their formal diagnosis by a healthcare provider. Data elements of in...
Eligibility Criteria
Inclusion
- Diagnosis of a systemic vasculitis: The V-PPRN includes patients with self-reported Behçet's disease, central nervous system vasculitis, cryoglobulinemic vasculitis, eosinophilic granulomatosis with polyangiitis (Churg-Strauss Syndrome, CSS), giant cell (temporal) arteritis (GCA), granulomatosis with polyangiitis (Wegener's, GPA), IgA vasculitis (Henoch-Schönlein Purpura), microscopic polyangiitis (MPA), polyarteritis nodosa (PAN), Takayasu's arteritis (TAK), and urticarial vasculitis.
- Language requirements: questionnaire will be in English only
Exclusion
- Inability to provide informed consent and complete survey in English
- Patients with a diagnosis of "other" type of vasculitis
- Patients with a "missing" diagnosis -
Key Trial Info
Start Date :
January 11 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 21 2018
Estimated Enrollment :
456 Patients enrolled
Trial Details
Trial ID
NCT03410290
Start Date
January 11 2018
End Date
May 21 2018
Last Update
June 6 2018
Active Locations (1)
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1
University of South Florida
Tampa, Florida, United States, 33612