Status:
UNKNOWN
QUEST: QUality of Life and Experiences of Sarcoma Trajectories
Lead Sponsor:
Radboud University Medical Center
Conditions:
Quality of Life
Sarcoma
Eligibility:
All Genders
18+ years
Brief Summary
Background: The prognosis of patients with rare cancers in general and sarcomas in particular suffers from delay in diagnosis. Routes to diagnosis for sarcoma need to be quicker and more streamlined,...
Detailed Description
The researchers will conduct a longitudinal cohort study among all sarcoma patients (≥18 years of age) that will be newly diagnosed in 1.5 years period from October 1st 2017 to March 30st 2019 in one ...
Eligibility Criteria
Inclusion
- Age at diagnosis ≥ 18 years
- Diagnosis of sarcoma (histology confirmed by sarcoma histopathologist; according to ICD-10-GM codes C40 and C41 for bone sarcoma and C49 for soft-tissue sarcoma)
- Able to communicate in English (or Dutch)
- Mental capacity to provide informed consent and to participate in the study (as determined by the referring health care professional)
- Patients must be able to complete questionnaires themselves
- Patients must be under treatment or follow-up at one of the participating hospitals.
Exclusion
- Too ill to complete questionnaires (according to advice from (former) treating specialist)
- Patients with desmoids fibromatosis will be excluded because of the non-malignancy of the disease; and patients with gastrointestinal stromal tumours (GIST; ICD-10-GM codes C15-20, C26, C48 and C80) will be excluded.
Key Trial Info
Start Date :
February 15 2018
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
February 1 2021
Estimated Enrollment :
350 Patients enrolled
Trial Details
Trial ID
NCT03441906
Start Date
February 15 2018
End Date
February 1 2021
Last Update
March 13 2020
Active Locations (8)
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1
NKI-AVL
Amsterdam, Netherlands
2
UMCG
Groningen, Netherlands
3
LUMC
Leiden, Netherlands
4
Radboudumc
Nijmegen, Netherlands, 6525GA