Status:
RECRUITING
MyVHL: Patient Natural History Study
Lead Sponsor:
Joshua Mann, MPH
Collaborating Sponsors:
National Organization for Rare Disorders
Conditions:
Von Hippel-Lindau Disease
Hereditary Leiomyomatosis and Renal Cell Cancer
Eligibility:
All Genders
Brief Summary
MyVHL is a multi-patient database which helps researchers identify patterns across VHL patients. MyVHL provides you -and researchers -with more complete information about VHL, like how your lifestyle,...
Eligibility Criteria
Inclusion
- All patients with von Hippel-Lindau Disease (VHL)
Exclusion
- \-
Key Trial Info
Start Date :
January 1 2012
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2028
Estimated Enrollment :
10000 Patients enrolled
Trial Details
Trial ID
NCT03749980
Start Date
January 1 2012
End Date
December 1 2028
Last Update
April 26 2024
Active Locations (1)
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1
VHL Alliance
Boston, Massachusetts, United States, 02132