Status:

COMPLETED

Limited-efficacy Testing of SDS and NEMOST for Early Onset Neuromuscular Scoliosis

Lead Sponsor:

UMC Utrecht

Collaborating Sponsors:

EUROS

Conditions:

Neuromuscular Scoliosis

Distraction System

Eligibility:

All Genders

Phase:

NA

Brief Summary

The primary aim of this study is to investigate and describe the limited efficacy of the Spring Distraction System (SDS) and Bilateral One Way Rod (NEMOST) in maintaining curve reduction without repea...

Detailed Description

Several innovative solutions have been developed to treat growing children with a severe scoliosis. One device (SDS) was developed internally at the department of orthopaedics UMC Utrecht in the Nethe...

Eligibility Criteria

Inclusion

  • Non ambulant
  • Neuromuscular or syndromal scoliosis
  • Progressive scoliosis indicated for bipolar fixation extending to the pelvis
  • Diagnosis of scoliosis before age 10
  • Patient under 12 and open triradiate cartilage (usually closes around 12 years for girls and 14 years for boys)
  • Main curve proximal end vertebra below Th 3
  • Non rigid curve
  • Patients who have an indication for a primary surgery

Exclusion

  • Ambulant
  • Patients with closed triradiate cartilage
  • Patients with a skeletal dysplasia that effects growth (Achondroplasia, SED)
  • Patients with a systemic disease which severely influences bone quality e.g. osteogenesis imperfecta, metabolic diseases
  • Patients with soft tissue weakness (Ehler Danlos, Marfan, Neurofibromatosis, Prader Willi)
  • Patients that have a congenital anomaly of the spine of more than 5 vertebrae
  • Patients with an active systemic disease such as JIA, HIV, oncologic treatment
  • Patients with a previous surgical fusion of the spine
  • Patients that are expected to be lost to FU due to e.g. likely to immigrate within 1 year.
  • Patients that have had a previous spine surgery.

Key Trial Info

Start Date :

May 6 2019

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 13 2023

Estimated Enrollment :

28 Patients enrolled

Trial Details

Trial ID

NCT04021784

Start Date

May 6 2019

End Date

March 13 2023

Last Update

June 5 2023

Active Locations (3)

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Page 1 of 1 (3 locations)

1

Amsterdam UMC

Amsterdam, North Holland, Netherlands, 1105AZ

2

Erasmus Medical Center

Rotterdam, Netherlands

3

UMC Utrecht

Utrecht, Netherlands, 3584CX