Status:
COMPLETED
The Experience of Patients and Family Caregivers in Managing Pneumoconiosis in the Family Context
Lead Sponsor:
Chinese University of Hong Kong
Conditions:
Pneumoconiosis
Eligibility:
All Genders
21+ years
Brief Summary
This is an exploratory qualitative study to understand the needs of patients with pneumoconiosis, and the care-giving experience of their family caregivers. Patients with a confirmed diagnosis of pneu...
Detailed Description
Pneumoconiosis is a fibrotic pulmonary disease resulting from workplace exposure to hazardous dusts containing free silica or asbestos, which causes irreversible progressive respiratory impairment amo...
Eligibility Criteria
Inclusion
- For Patients:
- a confirmed diagnosis of pneumoconiosis for at least 1 year
- had registered with the Pneumoconiosis Compensation Fund Board in Hong Kong to receive compensation
- For the respective family caregivers:
- 21 years of age or older
- assuming the role as the primary caregivers of a pneumoconiosis patient who have registered with the Pneumoconiosis Compensation Fund Board
Exclusion
- Those patients or family caregivers with impaired communication ability or impaired cognitive function \[as indicated by the Abbreviated Mental Test (AMT) score ≤ 6/10\] in preventing them to participate in the research activities will be excluded.
Key Trial Info
Start Date :
October 5 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
September 30 2019
Estimated Enrollment :
83 Patients enrolled
Trial Details
Trial ID
NCT04022902
Start Date
October 5 2018
End Date
September 30 2019
Last Update
January 29 2021
Active Locations (1)
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1
Pneumoconiosis Compensation Fund Board
Hong Kong, Hong Kong