Status:
RECRUITING
ADPKD Patient Registry
Lead Sponsor:
PKD Foundation
Conditions:
Polycystic Kidney Diseases
Eligibility:
All Genders
Brief Summary
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their heal...
Detailed Description
The ADPKD Registry will be a patient-powered network of people with ADPKD. This data will inform new research to improve ADPKD patient outcomes, learn more about the patient journey and discover unmet...
Eligibility Criteria
Inclusion
- Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD)
Exclusion
- caretakers, family members or friends of individuals with ADPKD
Key Trial Info
Start Date :
September 4 2019
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
September 4 2029
Estimated Enrollment :
3000 Patients enrolled
Trial Details
Trial ID
NCT04039061
Start Date
September 4 2019
End Date
September 4 2029
Last Update
November 18 2023
Active Locations (1)
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1
PKD Foundation
Kansas City, Missouri, United States, 64131