Status:
TERMINATED
Measuring and Improving Coproduction Using coopeRATE
Lead Sponsor:
Dartmouth-Hitchcock Medical Center
Collaborating Sponsors:
Cystic Fibrosis Foundation
Boston Children's Hospital
Conditions:
Cystic Fibrosis
Chronic Disease
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The purpose of this study is to identify new methods of measuring and improving collaborative goal setting between patients and clinicians in adult cystic fibrosis care.
Detailed Description
This study has 3 specific aims: Aim 1 will assess the construct validity of the coopeRATE Measure in the before phase of a before-and-after study in adult cystic fibrosis care settings. The coopeRATE ...
Eligibility Criteria
Inclusion
- Have a diagnosis of cystic fibrosis
- Are 18 years of age or older
- Can read and write in English
- Are attending a participating site for a routine cystic fibrosis care visit
- Have already consented to participate in the Cystic Fibrosis Foundation Patient Registry
- Allow study researchers to access their Cystic Fibrosis Foundation Patient Registry information and link it to their study data
- Have not previously participated in the study
Exclusion
- Do not have a diagnosis of cystic fibrosis
- Are less than 18 years of age
- Cannot read and write in English
- Are not attending a participating site for a routine cystic fibrosis care visit
- Have not already consented to participate in the Cystic Fibrosis Foundation Patient Registry
- Do not allow study researchers to access their Cystic Fibrosis Foundation Patient Registry information and link it to their study data
- Have previously participated in the study
Key Trial Info
Start Date :
December 2 2019
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
March 16 2020
Estimated Enrollment :
280 Patients enrolled
Trial Details
Trial ID
NCT04060329
Start Date
December 2 2019
End Date
March 16 2020
Last Update
July 9 2020
Active Locations (9)
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1
University of California San Diego
San Diego, California, United States, 92103
2
National Jewish Health
Denver, Colorado, United States, 80206
3
University of Kansas Medical Center
Kansas City, Kansas, United States, 66160
4
Boston Children's Hospital
Boston, Massachusetts, United States, 02115