Status:
RECRUITING
Pulmonary Hypertension Association Registry
Lead Sponsor:
Pulmonary Hypertension Association, Inc.
Conditions:
Pulmonary Arterial Hypertension
Chronic Thromboembolic Pulmonary Hypertension
Eligibility:
All Genders
Brief Summary
The PHA Registry (PHAR) is a national study about people who have pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH). PHAR collects information from people...
Eligibility Criteria
Inclusion
- All age groups
- Written informed consent
- Pulmonary arterial hypertension (PAH), chronic thromboembolic pulmonary hypertension (CTEPH), or pediatric PH due to developmental lung disease
- Within 6 months of first outpatient visit at a PH Care Center
Exclusion
- Diagnosis of WSPH Group 2 pulmonary hypertension
- Diagnosis of WSPH Group 3 pulmonary hypertension, except PH due to developmental lung disease
- Diagnosis of WSPH Group 5 pulmonary hypertension
Key Trial Info
Start Date :
October 1 2015
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2025
Estimated Enrollment :
3000 Patients enrolled
Trial Details
Trial ID
NCT04071327
Start Date
October 1 2015
End Date
December 1 2025
Last Update
November 14 2025
Active Locations (52)
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1
Arizona Pulmonary Specialists, Ltd.
Phoenix, Arizona, United States, 85012
2
UC Davis Health
Sacramento, California, United States, 95816
3
UCSF Medical Center
San Francisco, California, United States, 94143
4
UCSF Benioff Children's Hospital
San Francisco, California, United States, 94158