Status:

WITHDRAWN

Project Aura: Co-design of a Home-based Monitoring Service

Lead Sponsor:

Entia Ltd

Conditions:

Anemia of Chronic Kidney Disease

Eligibility:

All Genders

16+ years

Brief Summary

Co-design of a home-based haemoglobin monitoring system with participants with anaemia of chronic kidney disease.

Detailed Description

The device/monitoring system being developed measures the haemoglobin and haematocrit levels in blood from a single drop of blood. By measuring these blood parameter, participants are able to monitor ...

Eligibility Criteria

Inclusion

  • Inclusion criteria:
  • For patients:
  • Adequate English to participate in focus groups without an interpreter
  • Patients of the study site who are currently undergoing treatment for anaemia of CKD
  • Patients willing to participate in at least one or more 60-minute and ideally 90-minute focus groups at the designated study location, time and date.
  • Patients capable of providing informed consent before attending the first focus group
  • For carers:
  • Should be the primary carer nominated by a patient who fulfils the inclusion criteria, this includes parents of affected children
  • Should be willing to participate in at least 60-minute and ideally 90-minute focus groups at the designated study location, time and date.
  • Carers can only participate in the study with the patient he/she is caring for. The patient has also to be involved in the study
  • Carers need to be capable of providing informed consent before attending the first focus group
  • For healthcare professionals:
  • All clinicians need to be current employees of the study site
  • Doctors need to be employed at Specialist Registrar, Fellow or Consultant Level
  • Nurses of all grades are invited to participate but ideally need to have had some involvement in the outpatient care of CKD patients with anaemia
  • All participants:
  • Should be willing to have the session's recorded audio, transcripts and analysed data from the focus groups shared with Entia.
  • should be willing to attend multiple 60 to 90 minute focus groups.
  • should be willing for unidentifiable photos and video footage to be taken during the interview.
  • Participants attending focus groups later in the development process must be comfortable consenting to finger prick testing/ assessing the ease of use of the test disposable
  • Exclusion criteria:
  • Patients:
  • Does not have adequate English to participate in focus group interviews without an interpreter.
  • Patients of the study site who are not currently undergoing treatment or have previously undergone treatment within the past 12 months.
  • Patients not willing to participate in at least 60-minute and ideally 90-minute focus group discussion at the designated study location, time and date.
  • Participant not capable of providing consent or have a suitable, legally acceptable representative present to provide consent before the focus group interview.
  • For carers:
  • Is not the nominated primary carer of a patient who fulfils the inclusion criteria, this includes parents of affected children
  • Not paired with a patient that is involved in the study
  • Carers not willing to participate in at least a 60-minute and ideally 90-minute focus group discussion at the designated study location, time and date.
  • For healthcare professionals:
  • None.

Exclusion

    Key Trial Info

    Start Date :

    February 17 2020

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ACTUAL

    End Date :

    June 15 2020

    Estimated Enrollment :

    Patients enrolled

    Trial Details

    Trial ID

    NCT04112615

    Start Date

    February 17 2020

    End Date

    June 15 2020

    Last Update

    February 10 2021

    Active Locations (1)

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    Page 1 of 1 (1 locations)

    1

    Hull University Teaching Hospitals NHS Trust

    Hull, United Kingdom, HU3 2JZ