Status:
RECRUITING
Registry of Osteogenesis Imperfecta
Lead Sponsor:
Luca Sangiorgi
Conditions:
Osteogenesis Imperfecta
Eligibility:
All Genders
Brief Summary
ROI is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to...
Detailed Description
The traditional method of collecting patient information is often chaotic, inconvenient and sometimes even unsafe, particularly when dealing with rare diseases. In 2013, the need to simplify the diagn...
Eligibility Criteria
Inclusion
- All Osteogenesis Imperfecta patients, including prenatal and fetal diagnosis of Osteogenesis Imperfecta
Exclusion
- Any condition unrelated to Osteogenesis Imperfecta
Key Trial Info
Start Date :
June 28 2013
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
February 29 2032
Estimated Enrollment :
5000 Patients enrolled
Trial Details
Trial ID
NCT04115774
Start Date
June 28 2013
End Date
February 29 2032
Last Update
November 20 2025
Active Locations (1)
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1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136