Status:
COMPLETED
Electronic Patient-reported Outcome Monitoring in Aplastic Anemia and Paroxysmal Nocturnal Hemoglobinuria
Lead Sponsor:
University Hospital, Basel, Switzerland
Collaborating Sponsors:
ProPatient foundation of the University Hospital Basel
Novartis
Conditions:
Aplastic Anemia
Paroxysmal Nocturnal Hemoglobinuria
Eligibility:
All Genders
18+ years
Brief Summary
Aplastic anemia (AA) and paroxysmal nocturnal hemoglobinuria (PNH) are interrelated and very rare diseases. Therefore, little data about clinical characteristics, especially the variety of symptoms in...
Eligibility Criteria
Inclusion
- AA (acquired and hereditary) and/or PNH patients
- Minimal level of computer literacy with prior email experience and access to an Internet connection
Exclusion
- Mental alteration or psychiatric disease that can compromise written informed consent or adherence to the protocol and monitoring of the trial
Key Trial Info
Start Date :
November 1 2019
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
July 6 2020
Estimated Enrollment :
9 Patients enrolled
Trial Details
Trial ID
NCT04128943
Start Date
November 1 2019
End Date
July 6 2020
Last Update
October 5 2020
Active Locations (1)
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1
Division of Hematology, University Hospital Basel
Basel, Switzerland, 4031