Status:
RECRUITING
Registry of Ehlers-Danlos Syndrome
Lead Sponsor:
Luca Sangiorgi
Conditions:
Ehlers-Danlos Syndrome
Eligibility:
All Genders
Brief Summary
RED is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to...
Detailed Description
The traditional method of collecting patient information is often chaotic, inconvenient and sometimes even unsafe, particularly when dealing with rare diseases. In 2014, the need to simplify the diagn...
Eligibility Criteria
Inclusion
- All Ehlers-Danlos Syndrome patients, including prenatal and fetal diagnosis of Ehlers-Danlos Syndrome
Exclusion
- Any condition unrelated to Ehlers-Danlos Syndrome
Key Trial Info
Start Date :
June 1 2014
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
January 1 2033
Estimated Enrollment :
3000 Patients enrolled
Trial Details
Trial ID
NCT04133272
Start Date
June 1 2014
End Date
January 1 2033
Last Update
November 20 2025
Active Locations (1)
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1
Irccs Istituto Ortopedico Rizzoli
Bologna, Emilia-Romagna, Italy, 40136