Status:

UNKNOWN

Identification of the Genetic Causes of Rare Diseases With Negative Exome Findings

Lead Sponsor:

University Hospital Tuebingen

Conditions:

Rare Diseases

Genetic Predisposition to Disease

Eligibility:

All Genders

Phase:

NA

Brief Summary

The GENOME + project will enroll patients (n = ca. 100) and their healthy parents with unclear molecular cause of the disease, suspected genetic cause of the disease and previous detailed molecular an...

Detailed Description

In the GENOME+ study (monocentric, prospective, open-label diagnostic study), patients with molecularly undiagnosed diseases will diagnostically be analyzed by means of omics technologies or re-analyz...

Eligibility Criteria

Inclusion

  • Unclear diagnosis
  • Suspected genetic cause of the disease
  • Previous detailed molecular analysis like Whole Exome Sequencing (WES) did not lead to the identification of the disease causing mechanism
  • Healthy parents of those affected for trio analysis (exception of one parent is not available for the study)

Exclusion

  • Missing informed consent of the patient and her/his parents

Key Trial Info

Start Date :

February 1 2021

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

December 1 2024

Estimated Enrollment :

100 Patients enrolled

Trial Details

Trial ID

NCT04315727

Start Date

February 1 2021

End Date

December 1 2024

Last Update

November 29 2023

Active Locations (2)

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Page 1 of 1 (2 locations)

1

University Hospital Tübingen

Tübingen, Germany, 72076

2

University Hospital Tübingen

Tübingen, Germany, 72076