Status:
COMPLETED
Relationships, Employment, Autonomy, and Life Satisfaction (REALS) Study
Lead Sponsor:
University of Pittsburgh
Collaborating Sponsors:
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Autism Speaks
Conditions:
Autism Spectrum Disorder
Eligibility:
All Genders
18+ years
Brief Summary
One of the major methodological obstacles to more informed policies and programs to support the successful transition to adulthood in autism spectrum disorder (ASD) is the absence of suitable measures...
Detailed Description
A major methodological obstacle to more informed policies to support autistic adults and adults with other intellectual and developmental disabilities (IDD) is the absence of suitable measures of outc...
Eligibility Criteria
Inclusion
- Across Aims, inclusion criteria are:
- adult age, defined as 18+ years old;
- professional diagnosis of ASD or caregiver of an adult with a professional diagnosis of ASD.
- Inclusion criteria for caregivers of adults with ASD will be
- age 18 years or older;
- caregiver of an autistic adult with at least weekly contact. For adults who cannot self-report, only caregiver report data on the REALS will be collected.
Exclusion
- Because the goal is to refine the items and ensure coverage of all relevant constructs, the investigators will seek a broad sample to support generalizability and representativeness (there will be no exclusion criteria).
Key Trial Info
Start Date :
June 28 2021
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
February 28 2025
Estimated Enrollment :
1650 Patients enrolled
Trial Details
Trial ID
NCT04381195
Start Date
June 28 2021
End Date
February 28 2025
Last Update
April 4 2025
Active Locations (1)
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1
University of Pittsburgh
Pittsburgh, Pennsylvania, United States, 15213