Status:

COMPLETED

CCCR Lupus Patient Navigator Program

Lead Sponsor:

Medical University of South Carolina

Collaborating Sponsors:

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

University of Alabama at Birmingham

Conditions:

Systemic Lupus Erythematosus (SLE)

Eligibility:

All Genders

18+ years

Phase:

NA

Brief Summary

To address the health disparities in SLE outcomes for minorities, targeted intervention will be used to address the common barriers to care among patients; a comprehensive patient navigator approach w...

Eligibility Criteria

Inclusion

  • Self-identified Minority.
  • Patients ≥ 18 years of age as documented in the electronic medical record.
  • Meeting either American College of Rheumatology or SLICC Classification Criteria for SLE as documented in the electronic medical record.
  • Ability to speak and understand English by self-report.
  • In the past six months having ≥ 1 missed clinic or diagnostic study/laboratory visit as documented in the electronic medical record, or self-reported failure to adhere with prescribed medical therapy for SLE.
  • In the past six months having been prescribed at least one immunosuppressive medication for SLE activity as documented in the electronic medical record regardless of whether taking the medication.
  • Currently enrolled into the Core Center for Clinical Research (CCCR; Pro 00021985) with properly executed Informed Consent Document and HIPAA Authorization.
  • Have telephone access.

Exclusion

  • Unwilling or unable to give informed consent.
  • Being a prisoner or institutionalized individual.
  • Without telephone access.
  • Do not meet all of the inclusion criteria listed above.

Key Trial Info

Start Date :

September 3 2020

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 30 2023

Estimated Enrollment :

75 Patients enrolled

Trial Details

Trial ID

NCT04461158

Start Date

September 3 2020

End Date

March 30 2023

Last Update

May 4 2025

Active Locations (1)

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1

Medical University of South Carolina

Charleston, South Carolina, United States, 29425