Status:

ENROLLING_BY_INVITATION

Genetic Risk Estimations for Influencing Decision Making in Women at High Risk of Breast Cancer, GENRE 2 Study

Lead Sponsor:

Mayo Clinic

Conditions:

Breast Cancer

Eligibility:

FEMALE

35-75 years

Brief Summary

The primary aim of this study is to determine if the addition of an individual polygenic risk score (PRS) in addition to the Breast Cancer Risk Assessment Tool (BCRAT) or Tyrer-Cuzick (IBIS) score wil...

Detailed Description

This is a minimal risk prospective multisite study with a single arm incorporating the PRS into a standard breast cancer risk reduction consultation, followed by annual surveys over 10 years to determ...

Eligibility Criteria

Inclusion

  • Women \>= 35 years old and =\< 75 years old with at least one of the following:
  • A National Cancer Institute (NCI)-BCRAT 5 year risk of \>= 3% which corresponds to the level in which there is moderate evidence of treatment benefit outweighing risk according to the United States (US) Preventative Services Task Force
  • IBIS (Tyrer-Cuzik) score for the 10 year risk of breast cancer of \>= 5%
  • History atypical ductal hyperplasia or atypical lobular hyperplasia with a BCRAT \>= 3% or IBIS \>= 5%
  • History of lobular carcinoma in situ with a BCRAT \>= 3% or IBIS \>= 5% OR
  • Women \>= 18 years old or =\< 75 years old with a BRCA 1 or 2 mutation, CHEK 2, PALB 2, ATM, or other hereditary breast mutation carrier per investigator
  • Willing and able to provide an email address to receive study surveys
  • Able to participate in all aspects of the study
  • Understand and sign the study informed consent

Exclusion

  • Women whose BCRAT falls below the threshold (\<3 % 5 year risk) of moderate benefit according to the US Preventative Task Force AND Women whose IBIS score is \<8% for the 10 year risk
  • Women with known contra-indications to Tamoxifen, raloxifene ,exemestane, or anastrazole
  • Current or prior use of Tamoxifen, raloxifene, exemestane or anastrazole
  • Unable to give informed consent
  • Prior history of invasive breast cancer, ductal carcinoma in situ or other breast cancers
  • At high risk due to prior radiation therapy to the chest
  • Women who are pregnant or breastfeeding
  • Prior risk reducing or prophylactic mastectomy
  • Unwilling or unable to provide an email address for study surveys to be sent to
  • Subject has a known history or any condition or factor judged by the investigator to preclude participation in the study or which might hinder adherence

Key Trial Info

Start Date :

October 17 2019

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

December 15 2029

Estimated Enrollment :

900 Patients enrolled

Trial Details

Trial ID

NCT04474834

Start Date

October 17 2019

End Date

December 15 2029

Last Update

February 12 2025

Active Locations (5)

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Page 1 of 2 (5 locations)

1

Mayo Clinic

Scottsdale, Arizona, United States, 85259

2

Mayo Clinic

Jacksonville, Florida, United States, 32224-9980

3

Northwestern University

Evanston, Illinois, United States, 60208

4

Mayo Clinic in Rochester

Rochester, Minnesota, United States, 55905