Status:
COMPLETED
Digital-storytelling Intervention for Rural-dwelling Children
Lead Sponsor:
Vanderbilt University
Collaborating Sponsors:
Rita & Alex Hillman Foundation
Conditions:
Pediatrics
Eligibility:
All Genders
8-17 years
Phase:
NA
Brief Summary
The overall purpose of this study is to test the feasibility of a web-based storytelling intervention for rural-dwelling children (ages 8-17) with serious advanced illnesses. There is a growing need ...
Detailed Description
Background: Nearly 1 million children between the ages of 8 and 17 years worldwide are estimated to be in need of palliative care. These children and their parents are at substantial risk for sufferin...
Eligibility Criteria
Inclusion
- Inclusion Criteria for Children:
- any progressively declining (acute or chronic) life-threatening diagnosis per parent report
- living in a rural area based on the Federal Office of Rural Health Policy criteria (https://www.hrsa.gov/rural-health/about-us/definition/datafiles.html)
- speak and understand English
- Inclusion Criteria for Parents:
- 18 years of age and older
- child's primary parent caregiver
- speak and understand English
- living in a rural area based on the Federal Office of Rural Health Policy criteria (https://www.hrsa.gov/rural-health/about-us/definition/datafiles.html)
- Exclusion Criteria:
- currently live outside of the United States or live in a non-rural area
- have any cognitive impairment(s) per parent report
- do not have internet access and/or electronic devices (e.g., laptop, desktop computer, mobile phone, tablet PC) required for the study participation
Exclusion
Key Trial Info
Start Date :
February 12 2021
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 31 2022
Estimated Enrollment :
50 Patients enrolled
Trial Details
Trial ID
NCT04665479
Start Date
February 12 2021
End Date
December 31 2022
Last Update
February 27 2023
Active Locations (1)
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1
Vanderbilt-Ingram Cancer Center
Nashville, Tennessee, United States, 37232